Felicity Boardman

Affiliate Social Scientist with a Specialism in Bioethics and Disability

“My vision is to bring the voices of people living with disabilities (often not prioritised) to the fore of debates around the implications of genomic medicine and to raise awareness of the full range of implications genomic medicine has for our society. I am compelled by developments in genomic medicine, and in particular the increased number of decisions it brings to an ever-broadening remit of people. I am driven to explore the various ways people make sense of, and respond to these decisions and the impacts such decisions have for both people living with genetic disease/disability and the general public.”

Dr. Felicity Boardman is an associate professor in medicine ethics and society from Warwick Medical School. Her research career has focused on the social and ethical implications of genetic technologies, and in particular, their relationship to disabled people and their families. She is currently in receipt of a Wellcome Trust Investigator Award exploring attitudes towards pre-conception carrier screening in the "Imagining Futures" project.

Research Interests

Mixed methods; genetic and reproductive technologies; disability; Spinal Muscular Atrophy; qualitative research methods; stigma.

Research Grants & Awards 

1) Wellcome Trust Investigator Award, February 2017- February 2020 (£248, 802)

2) ESRC Future Research Leaders Fellowship May 2013- Feb 2017. 'Imagining Futures: The Social and Ethical Implications of Genetic Screening' (£161, 074)

3) Mildred Blaxter Post-Doctoral Fellowship from the Foundation for the Sociology of Health and Illness. November 2011- April 2013.* (£38,000)

4) ESRC 1+3 Doctoral Scholarship, Department of Sociology, 2005-2009. (£80,000)

Publications

Boardman, Felicity K., Hale, Rachel, Young, Philip J.. 2019. Prevention of lives affected by haemophilia : a mixed methods study of the views of adults with haemophilia and their families towards genetic screening. Molecular Genetics and Genomic Medicine

Boardman, Felicity K., Young, P., Warren, O., Griffiths, Frances. 2018. The role of experiential knowledge within attitudes towards genetic carrier screening : a comparison of people with and without experience of spinal muscular atrophy. Health Expectations, 21 (1), pp. 201-211

Boardman, Felicity K., Young, Philip J., Griffiths, Frances. 2018. Impairment experiences, identity and attitudes towards genetic screening : the views of people with Spinal Muscular Atrophy. Journal of Genetic Counseling, 27 (1), pp. 69-84

Boardman, Felicity K., Sadler, Chloe, Young, Philip J.. 2018. Newborn genetic screening for spinal muscular atrophy in the UK : the views of the general population. Molecular Genetics and Genomic Medicine, 6 (1), pp. 99-108

Boardman, Felicity K., Hale, Rachel. 2018. How do genetically disabled adults view selective reproduction? : impairment, identity and genetic screening. Molecular Genetics & Genomic Medicine

Boardman, Felicity K., Hale, Rachel. 2018. "I didn't take it too seriously because I'd just never heard of it” : experiential knowledge and genetic screening for thalassaemia in the UK. Journal of Genetic Counseling

Boardman, Felicity K., Hale, Rachel. 2018. Responsibility and identity and genomic sequencing : a comparison of published recommendations and patient perspectives on accepting or declining incidental findings. Molecular Genetics and Genomic Medicine, 6 (6), pp. 1079-1096

Boardman, Felicity K.. 2017. Experience as knowledge : disability, distillation and (reprogenetic) decision-making. Social Science & Medicine, 191, pp. 186-193

Boardman, Felicity K., Young, Philip J., Griffiths, Frances. 2017. Newborn screening for spinal muscular atrophy : the views of affected families and adults. American Journal of Medical Genetics Part A, 173 (6), pp. 1546-1561

Boardman, Felicity K., Young, Philip J., Griffiths, Frances. 2017. Population screening for spinal muscular atrophy : a mixed methods study of the views of affected families. American Journal of Medical Genetics (Part A), 173 (2), pp. 421-434

Griffiths, Frances, Boardman, Felicity K., Chondros, Patty, Dowrick, Christopher, Densley, Konstancja, Hegarty, Kelsey, Gunn, Jane. 2015. The effect of strategies of personal resilience on depression recovery in an Australian cohort : a mixed methods study. Health : An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, Volume 19 (Number 1), pp. 86-106

Griffiths, Frances, Mason, Victoria, Boardman, Felicity K., Dennick, Kathryn J., Haywood, Kirstie L., Achten, Juul, Parsons, Nicholas R., Griffin, Xavier L., Costa, Matthew L.. 2015. Evaluating recovery following hip fracture : a qualitative interview study of what is important to patients. British Medical Journal, Volume 5 (Number 1), pp. 1-10

Boardman, Felicity K.. 2014. Knowledge is power? : the role of experiential knowledge in genetically 'risky' reproductive decisions. Sociology of Health & Illness, Volume 36 (Number 1), pp. 137-150

Boardman, Felicity K.. 2014. The expressivist objection to prenatal testing : the experiences of families living with genetic disease. Social Science & Medicine, Volume 107, pp. 18-25

Boardman, Felicity K.. 2014. Experiential knowledge of disability, impairment and illness : the reproductive decisions of families genetically at risk. Health: Interdisciplinary Journal for the Social Study of Health, Illness & Medicine, Volume 18 (Number 5), pp. 476-492

Staniszewska, Sophie, Boardman, Felicity K., Gunn, Lee, Roberts, Julie, Clay, Diane, Seers, Kate, Brett, Jo, Avital, Liz, Bullock, Ian, O' Flynn, N.. 2014. The Warwick patient experiences framework : patient-based evidence in clinical guidelines. International Journal for Quality in Health Care, Volume 26 (Number 2), pp. 151-157

Griffiths, Frances, Cave, Jonathan A. K., Boardman, Felicity K., Ren, Justin, Pawlikowska, T., Ball, Robin, Clarke, Aileen, Cohen, Alan B.. 2012. Social networks : the future for health care delivery. Social Science & Medicine, Volume 75 (Number 12), pp. 2233-2241

Griffin, Xavier L., Achten, Juul, Parsons, Nicholas R., Boardman, Felicity K., Griffiths, Frances, Costa, Matthew L.. 2012. The Warwick Hip Trauma Evaluation - an abridged protocol for the WHiTE Study : a multiple embedded randomised controlled trial cohort study. Bone & Joint Research, Volume 1 (Number 11), pp. 310-314

Boardman, Felicity K., Griffiths, Frances, Kokanovic, Renata, Potiriadis, Maria, Dowrick, Christopher, Gunn, Jane. 2011. Resilience as a response to the stigma of depression : a mixed methods analysis. Journal of Affective Disorders, Vol.135 (No.1-3), pp. 267-276

Brown, Lindsey, Boardman, Felicity K.. 2010. Accessing the field : disability and the research process. Social Science & Medicine, Vol.72 (No.1), pp. 23-30

Griffiths, Frances, Lowe, Pam, Boardman, Felicity K., Ayre, Catherine, Gadsby, Roger. 2008. Becoming pregnant : exploring the perspectives of women living with diabetes. British Journal of General Practice, Vol.58 (No.548), pp. 184-190