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  1. Patch, C (2020). The impact of Covid-19 on rare disease communities. [Blog] Genomics Education Programme. 16h June. Available at: https://www.genomicseducation.hee.nhs.uk/blog/the-impact-of-covid-19-on-rare-disease-communities/ [Accessed: 24 June 2020].
  2. Milne R (2020) Societal considerations in host genome testing for COVID-19. Genetics in Medicine. Published online ahead of print, 8th June.
  3. Patch C (2020). Implementing a hybrid clinical/research model in genomic medicine: post 100,000 Genomes Project. Spoken presentation. European Society of Human Genetics 2020 Virtual Conference. 8 June. Online
  4. Middleton A, Patch C, Roberts J, Milne R, Costa A, Robarts L, Atutornu J (2020) Professional duties are now considered legal duties of care within genomic medicine. European Journal of Human Genetics. Published online ahead of print, 8th June.
  5. Middleton A (2020). How to help society interact with genomic technology. Invited plenary speaker. European Society of Human Genetics 2020 Virtual Conference. 8 June. Online
  6. Cantú C, Cheng G, Doerr S, Frost J and Gambacorta L for the Bank for International Settlement (2020). On health and privacy: technology to combat the pandemic. BIS bulletin no. 17. 19th May.
  7. Society and Ethics Research Wellcome Genome Campus (2020). AGNC chair’s message to the AGNC membership on changes to the genomic medicine service in England. Available at:https://youtu.be/hxc3jJ60bHQ [Accessed: 19 May 2020].
  8. Patch C, Roberts L (2020). A conversation between Christine Patch of Genomics England and Lauren Roberts of SWAN. Session 0103: Diagnosing Undiagnosed Rare Disease Patients: Tools and Resources to strengthen the voice of the undiagnosed Rare Disease Community at the 10th European Conference on Rare Diseases & Orphan Products. Online, 15th May.
  9. Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health (2020) Responsible Data Sharing to Respond to the COVID-19 Pandemic: Ethical and Legal Considerations (v 2.0). 15th May. Available online: https://docs.google.com/document/d/1wK_NoNYXKy0ttTQ-ySHh3ZRpvPrLV4uPwV8FSq6BQ60/edit# (Accessed: 2 June 2020)
  10. Costa A, Frankova V (2020). What next after the search for a diagnosis? Hearing families’ experiences. Spoken presentation. Session 0104: What’s Next After the Search for a Diagnosis? The Future of Specialised Health Services at the 10th European Conference on Rare Diseases & Orphan Products. Online, 15th May.
  11. Eurordis Rare Diseases Europe (2020), The 10th European Conference on Rare Diseases & Orphan Products, 14 - 15 May. Online.
  12. Emma T, Calzone KA, Badzek L... Middleton A, Patch C, et al (2020) A Roadmap for Global Acceleration of Genomics Integration Across Nursing. Journal of Nursing Scholarship, vol. 52, issue 3, pp 329-338, May
  13. Music of Life: What is a Gene at Raw Science 2020, Raw Science Film Festival, 16 April. The Shrine Auditorium, Los Angeles, USA 
  14. Arney, Kat (2020). The Alzheimer's Gene [Ingenious, BBC Radio 4] 9th April. Available at: https://www.bbc.co.uk/programmes/m000h0v8
  15. Voices of Genetic Counsellors: So Much More Than Just a Test at BreakThroughs: The Tulane Public Health & Social Justice Film Festival 2020, 3 April. The Tidewater Building, Tulane University, New Orleans, USA
  16. Torsten HV, Holtz V, Niemiec E, Howard HC, Middleton A, Prainsack B (2020). Willingness to donate genomic and other medical data: results from Germany. European Journal of Human Genetics. Published online ahead of print, 1st April. Available at: https://doi.org/10.1038/s41431-020-0611-2
  17. Middleton A, Milne R, et al (2020) Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data. European Journal of Human Genetics, vol. 28, issue 4, pp 424-434, April
  18. Milne R, Middleton A (2020).  Your DNA, Your Say: Global public views on sharing genomic data. Invited presentation at Genomics in Health Implementation Forum. Online. 23rd March.
  19. Genetics Literacy Project 2020. Podcast: Can you inherit more than half your genes from one parent? Debunking genomic myths and misconceptions. Genetic Literacy Project: Science Not Ideology [Online]. Available at:https://geneticliteracyproject.org/2020/03/16/podcast-can-you-inherit-more-than-half-your-genes-from-one-parent-debunking-genomic-myths-and-misconceptions/ [Accessed: 17 March 2020]
  20. Arney, Kat (2020). Can you have a 'perfect genome'? Myths and misconceptions in genomics [Genetics Unzipped: The Genetics Society podcast, S3.06] 12th March. Available at: https://geneticsunzipped.com/blog/2020/3/12/can-you-have-a-perfect-genome-myths-and-misconceptions-in-genomics
  21. Milne R (2020) The rare and the common: scale and the genetic imaginary in Alzheimer's disease drug development. New Genetics and Society, vol. 39, issue 1, pp 101-126, March
  22. Savard J, Hickerton C, Metcalfe SA… Middleton A, et al (2020) From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing. AJOB Empirical Bioethics, vol. 11, issue 1, pp. 63-76, February
  23. Fellmann F, Rial-Sebbag E, Patch C, et al (2020) ESHG PPPC Comments on postmortem use of genetic data for research purposes. European Journal of Human Genetics, vol. 28, pp 144-146, February
  24. Roberts J (2020). Genetics in Pop Culture: Friend or Foe. Festival of Genomics. London, UK, 30th January.
  25. Middleton A, Roberts J (2020). Panel Discussion: Information Giving Versus Counselling in Genetic Counselling. Festival of Genomics. London, UK, 30th January.
  26. Middleton A, Patch C (2020) Health Education England's Genomic Education Programme Nursing and Midwifery Round Table. London 27th January, UK
  27. Genetics Literacy Project 2020. Podcast: The phrase ‘Who’s Your (Grand) Daddy’ has shocking relevance to Jack Nunn, as the Australian geneticist learns of his surprising link to Britain’s most notorious ‘sperminator’. Genetic Literacy Project: Science Not Ideology [Online]. Available at: https://geneticliteracyproject.org/2020/01/22/podcast-the-phrase-whos-your-grand-daddy-has-shocking-relevance-to-jack-nunn-as-the-australian-geneticist-learns-of-his-surprising-link-to-britains-most-notorious-sp/ [Accessed: 23 January 2020]
  28. Milne R (2020) Ethics, Genomics and Society. Stem Cell Research doctoral training centre, King's College London, 17th January.
  29. Arney, Kat (2020). Hidden family secrets revealed by genetic testing [Genetics Unzipped: The Gemetics Society Podcast] Season 3, episode 2, 16th January. Available at: https://geneticsunzipped.com/blog/2020/1/16/family-secrets-revealed-by-genetic-testing
  30. Milne R, Richard E, Larson EB, Brayne C 2019. Innovation should support societal responsibility for health. thebmjopinion [Online]. Available at: https://blogs.bmj.com/bmj/2019/12/30/innovation-support-societal-responsibility-health/ [Accessed 10 January 2020]

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