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  1. Middleton A (2020) Delivered lecture on the Molecular Pathology and Diagnosis of Cancer course. Advanced Courses and Scientific Conferences, Connecting Science, Wellcome Genome Campus. online, 26 November
  2. Lewis C, Hammon J, Hill M, Searle B, Hunter A, Patch C, Chitty LS, Sanderson SC (2020) Young people's understanding, attitudes and involvement in decision-making about genome sequencing for rare diseases: A qualitative study with participants in the UK 100, 000 Genomes Project. European Journal of Medical Genetics, vol. 63, issue 11, November
  3. Imagine Science Film Festival (2020) Voices of Genetic Counsellors - So Much More Than Just a Test. New York, USA (On-line). 16-23 October
  4. Milne R, Costa A (2020) Ethical challenges associated with the digital detection of dementia. In:  30th Alzheimer Europe Conference, Dementia in a Changing World. Online. 22 October
  5. Middleton A (2020) Invited presentation on Your DNA Your Say: Million Genome Stakeholder Coordination Framework meeting as part of the ‘Stronger’ European Health Union. 21 October
  6. The Cosmic Shambles Network (2020) Genetics Shambles: The Ethics of Genetics. [web video] 21st October. Available at: https://cosmicshambles.com/video/webseries/geneticsshambles/ethics [Accessed: 23 October 2020]
  7. GenomeWeb, (2020) And After the Test. [online] 19th October Available at: https://www.genomeweb.com/scan/and-after-test#.X5quQi2caCM  [Accessed 29 October 2020]
  8. Patch C, Middleton A (2020) As genomic testing increases, it is time to focus on post test care for patients. [Blog] The BMJ Opinion. [Online] 16 October. Available at: https://blogs.bmj.com/bmj/2020/10/16/as-genomic-testing-increases-it-is-time-to-focus-on-post-test-care-for-patients/  [Accessed: 29 October 2020]
  9. Patch C, Middleton A (2020) As genomic testing increases, it is time to focus on post test care for patients. the BMJ Opinion [Online] Available at: https://blogs.bmj.com/bmj/2020/10/16/as-genomic-testing-increases-it-is-time-to-focus-on-post-test-care-for-patients/ [Accessed: 16 October 2020]
  10. Segerdahl P. (2020) Delning av stora genomiska datamängder kräver vidsynt forskningskommunikation. [Blog] Etikbloggen: En forskningsblogg från Centrum för forsknings- & bioetik (CRB), Uppsala Universitet. [Online] 14th October. Available at: https://etikbloggen.crb.uu.se/2020/10/14/delning-av-stora-genomiska-datamangder-kraver-vidsynt-forskningskommunikation/. [Accessed: 29 October 2020]
  11. Segerdahl P. (2020) Global sharing of genomic data requires perspicuous research communication. [Blog] The Ethics Blog: A blog from the Centre for Research Ethics & Bioethics (CRB), Uppsala Universitet. [Online] 14th October. Available at: https://ethicsblog.crb.uu.se/2020/10/14/global-sharing-of-genomic-data-requires-perspicuous-research-communication/. [Accessed: 29 October 2020]
  12. Milne R, Robillard J, Fisk J (2020) Working with and learning from participants in ELSI: The experience of the European Prevention of Alzheimer’s Dementia project. In: ELSI Conference, Working together to end dementia. Online. 13 October
  13. Masterson, D 2020. Global survey: Obtaining genetic information comes down to trust. NUTRA ingredients-usa.com [Online]. 28th September. Available at: https://www.nutraingredients-usa.com/Article/2020/09/28/Global-survey-Obtaining-genetic-information-comes-down-to-trust#. [Accessed: 29 September 2019]
  14. Gunn S. (2020) Data sharing at risk due to lack of public trust. [Online] Front Line Genomics. 27th September. Available at: https://frontlinegenomics.com/data-sharing-at-risk-due-to-lack-of-public-trust/?utm_source=FLGNewsletter&utm_medium=30Sep&utm_campaign=FLGNews [Accessed: 23 October 2020]
  15. Film made by Lauren Robarts. Society and Ethics Research Wellcome Genome Campus (2020) Society and Ethics Research 2020 Showreel. Available at: https://youtu.be/dQ8RWIdid9g [Accessed: 25 September 2020]
  16. Tacc Hayka, 2020. 50% of those surveyed were ready to share their genetic data only anonymously. Takk Haka [online]. 24th September. Available from: https://nauka.tass.ru/nauka/9545021 [Accessed: 27 October 2020]
  17. Krasnaya Vesna IA, 2020. The Ministry of Education and Science declared the importance of promoting the benefits of genetic technologies. Rossa Primavera (красная весна) [online]. 24th September. Available from: https://rossaprimavera.ru/news/ce20b18e [Accessed: 29 September 2020]
  18. Zavtra News, 2020. The international study "YourDNAYourSay" showed: it is necessary to increase the level of public confidence in the exchange of genomic data. Zavtranews.ru [online]. 23rd September. Available from: https://zavtranews.ru/science/10737/ [Accessed: 27 October 2020]
  19. Министерство науки и высшего образования Российской Федерации (Ministry of Science and Higher Education of the Russian Federation), (2020) The international study "YourDNAYourSay" showed: it is necessary to increase the level of public confidence in the exchange of genomic data [online]. 23 September. Available at: https://www.minobrnauki.gov.ru/ru/press-center/card/?id_4=3108 [Accessed 23 October 2020]
  20. med.cap.ru, 2020. World study shows people's reluctance to participate in the exchange of genetic data. med.cap.ru [online]. 22nd September. Available from: https://www.med.cap.ru/press/2020/9/22/mirovoe-issledovanie-pokazalo-nezhelanie-lyudej-uc  [Accessed: 27 October 2020]
  21. Russian Medical Academy of Continuing Professional Education, 2020. Scientists from RMANPO took part in a global study of the attitude of the world community to genomic research and data exchange. Russian Medical Academy of Continuing Professional Education (РОССИЙСКАЯ МЕДИЦИНСКАЯ АКАДЕМИЯ НЕПРЕРЫВНОГО ПРОФЕССИОНАЛЬНОГО ОБРАЗОВАНИЯ) [online]. 22nd September. Available from: https://rmapo.ru/sveden/struct/rukovodstvo-aocftm/medicalbio/novosti-kafedry-medicinskoj-genetiki/9057-uchenye-rmanpo-prinjali-uchastie-v-globalnom-izuchenii-otnoshenija-mirovoj-obschestvennosti-k-genomnym-issledovanijam-i-obmenu-dannymi.html [Accessed: 27 October 2020]
  22. msn стиль жизни, на платформе Microsoft News, 2020. People do not trust organizations that deal with genetic information. msn стиль жизни, на платформе Microsoft News [online]. 21st September. Available from: https://www.msn.com/ru-ru/health/featured/люди-не-доверяют-работающим-с-генетической-информацией-организациям/ar-BB19g9JQ?li=BBoPWjK&srcref=rss   [Accessed: 30 October 2020]
  23. Nesterova Y, 2020. Most people are not ready to donate their DNA for research. PCR News [online]. 21st September. Available from: https://pcr.news/novosti/bolshinstvo-lyudey-ne-gotovo-cdavat-svoyu-dnk-dlya-issledovaniy/ [Accessed: 27 October 2020]
  24. N.P. Bochkova Medical Center, 2020. The results of a study of the attitude of the world community to the use of genetic information about people and the exchange of genetic data by various categories of researchers have been published. N.P. Bochkova Medical Center (Медико-генетический научный центр имени академика Н.П. Бочкова) [online]. 21st September. Available from: https://med-gen.ru/press-tcentr/novosti/opublikovany-rezul-taty-issledovaniia-otnosheniia-mirovoi-obshchestvennosti-k-ispol-zovaniiu-geneticheskoi-informatcii-o/   [Accessed: 27 October 2020]
  25. Centrum för forsknings- & bioetik (CRB), Uppsala Universitet, (2020) Forskare behöver allmänhetens förtroende för att kunna dela genomisk data. [online] 18th September. Available at: https://www.crb.uu.se/nyheter/text/?tarContentId=894190  [Accessed: 30 October 2020]
  26. Centre for Research Ethics & Bioethics (CRB), Uppsala University, (2020) Genomic data sharing requires public trust. [online] 18th September. Available at: https://www.crb.uu.se/news/item/?tarContentId=894190  [Accessed: 30 October 2020]
  27. Medvestnik, 2020. World study shows people's reluctance to participate in the exchange of genetic data. Medvestnik.ru (Медвестник) [online]. 18th September. Available from: https://medvestnik.ru/content/news/Mirovoe-issledovanie-pokazalo-nejelanie-ludei-uchastvovat-v-obmene-geneticheskimi-dannymi.html [Accessed: 27 October 2020]
  28. Cambridge Network 2020. Future of genomic research at risk without greater public trust in how genetic data is shared. Cambridge Network [Online]. 18th September. Available at: https://www.cambridgenetwork.co.uk/news/future-genomic-research-risk-without-greater-public-trust-how-genetic-data-shared  [Accessed: 29 September 2020]
  29. Chadwick, J 2020. Plumbers and teachers are invited to share their views on designer babies and genetically enhanced potatoes as part of a citizens' assembly on 're-engineering' the human species. Mail Online [Online]. 18th September. Available at: https://www.dailymail.co.uk/sciencetech/article-8748485/Gene-editing-Citizens-assembly-planned-engineering-human-species.html [Accessed: 28 September 2019]
  30. Tahir, M 2020. Genetics Data To Utilize For Advance Human Health And Medicine. Weekly Technology Times [Online]. 18th September. Available at: https://www.technologytimes.pk/2020/09/18/genetics-data-to-utilize-for-advance-human-health-and-medicine/  [Accessed: 28 September 2019]

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