This viewer contains all of our work in a citation list view. Each one has several 'tags' so that you may browse as you choose.
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  1. Middleton A., Milne R. and Almarri M.A. et al. (2020). Global public perceptions of genomic data sharing: what shapes the willingness to donate DNA and health data? American Journal of Human Genetics. Published online ahead of print, 17 September.
  2. Milne R, Costa A (2020) Detecting value(s): moral economies of digital innovation in early disease detection 
  3. Patch C (2020). How do we ‘do’ consent? Clinical & research models in genomic medicine 100,000 Genomes Project and beyond. Invited speaker as a part of the Society and Ethics Research Seminar Webinar Series. 12 August. Online
  4. Roberts J (2020). Problematic concepts in science communication: deficits, dialogues and expertise. Invited speaker as a part of the Society and Ethics Research Seminar Webinar Series. 28 July. Online
  5. Middleton A, Machiori M, Mabuka-Maroa J 2020. We need to talk about big data and genomics. Here’s why – and how. The European Sting [Online]. Available at: https://europeansting.com/2020/07/27/we-need-to-talk-about-big-data-and-genomics-heres-why-and-how/ [Accessed: 28 July 2020]
  6. Milne R (2020). Covid and Society: The implications of immunity passports. Invited speaker as a part of the Society and Ethics Research Seminar Webinar Series. 9 July. Online
  7. Middleton A. (2020) Ethics and genomic data sharing: global public attitudes. In: Board of Genetic Counselling India 5th Annual e-Conference 2020. 02 June. Online
  8. Tonkin E, Calzone K, Badzek L… Middleton, A, Patch C, et al (2020) A Maturity Matrix for Nurse Leaders to Facilitate and Benchmark Progress in Genomic Healthcare Policy, Infrastructure, Education, and Delivery. Journal of Nursing Scholarship. Published online ahead of print, 27 June.
  9. Patch, C (2020). The impact of Covid-19 on rare disease communities. [Blog] Genomics Education Programme. 16h June. Available at: https://www.genomicseducation.hee.nhs.uk/blog/the-impact-of-covid-19-on-rare-disease-communities/ [Accessed: 24 June 2020].
  10. Milne R (2020) Societal considerations in host genome testing for COVID-19. Genetics in Medicine. Published online ahead of print, 8th June.
  11. Patch C (2020). Implementing a hybrid clinical/research model in genomic medicine: post 100,000 Genomes Project. Spoken presentation. European Society of Human Genetics 2020 Virtual Conference. 8 June. Online
  12. Middleton A, Patch C, Roberts J, Milne R, Costa A, Robarts L, Atutornu J (2020) Professional duties are now considered legal duties of care within genomic medicine. European Journal of Human Genetics. Published online ahead of print, 8th June.
  13. Middleton A (2020). How to help society interact with genomic technology. Invited plenary speaker. European Society of Human Genetics 2020 Virtual Conference. 8 June. Online
  14. Cantú C, Cheng G, Doerr S, Frost J and Gambacorta L for the Bank for International Settlement (2020). On health and privacy: technology to combat the pandemic. BIS bulletin no. 17. 19th May.
  15. Society and Ethics Research Wellcome Genome Campus (2020). AGNC chair’s message to the AGNC membership on changes to the genomic medicine service in England. Available at:https://youtu.be/hxc3jJ60bHQ [Accessed: 19 May 2020].
  16. Patch C, Roberts L (2020). A conversation between Christine Patch of Genomics England and Lauren Roberts of SWAN. Session 0103: Diagnosing Undiagnosed Rare Disease Patients: Tools and Resources to strengthen the voice of the undiagnosed Rare Disease Community at the 10th European Conference on Rare Diseases & Orphan Products. Online, 15th May.
  17. Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health (2020) Responsible Data Sharing to Respond to the COVID-19 Pandemic: Ethical and Legal Considerations. 15th May. Available online: https://docs.google.com/document/d/1wK_NoNYXKy0ttTQ-ySHh3ZRpvPrLV4uPwV8FSq6BQ60/edit# (Accessed: 16 July 2020)
  18. Costa A, Frankova V (2020). What next after the search for a diagnosis? Hearing families’ experiences. Spoken presentation. Session 0104: What’s Next After the Search for a Diagnosis? The Future of Specialised Health Services at the 10th European Conference on Rare Diseases & Orphan Products. Online, 15th May.
  19. Eurordis Rare Diseases Europe (2020), The 10th European Conference on Rare Diseases & Orphan Products, 14 - 15 May. Online.
  20. Emma T, Calzone KA, Badzek L... Middleton A, Patch C, et al (2020) A Roadmap for Global Acceleration of Genomics Integration Across Nursing. Journal of Nursing Scholarship, vol. 52, issue 3, pp 329-338, May
  21. Music of Life: What is a Gene at Raw Science 2020, Raw Science Film Festival, 16 April. The Shrine Auditorium, Los Angeles, USA 
  22. Arney, Kat (2020). The Alzheimer's Gene [Ingenious, BBC Radio 4] 9th April. Available at: https://www.bbc.co.uk/programmes/m000h0v8
  23. Voices of Genetic Counsellors: So Much More Than Just a Test at BreakThroughs: The Tulane Public Health & Social Justice Film Festival 2020, 3 April. The Tidewater Building, Tulane University, New Orleans, USA
  24. Torsten HV, Holtz V, Niemiec E, Howard HC, Middleton A, Prainsack B (2020). Willingness to donate genomic and other medical data: results from Germany. European Journal of Human Genetics. Published online ahead of print, 1st April. Available at: https://doi.org/10.1038/s41431-020-0611-2
  25. Middleton A, Milne R, et al (2020) Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data. European Journal of Human Genetics, vol. 28, issue 4, pp 424-434, April
  26. Milne R, Middleton A (2020).  Your DNA, Your Say: Global public views on sharing genomic data. Invited presentation at Genomics in Health Implementation Forum. Online. 23rd March.
  27. Genetics Literacy Project 2020. Podcast: Can you inherit more than half your genes from one parent? Debunking genomic myths and misconceptions. Genetic Literacy Project: Science Not Ideology [Online]. Available at:https://geneticliteracyproject.org/2020/03/16/podcast-can-you-inherit-more-than-half-your-genes-from-one-parent-debunking-genomic-myths-and-misconceptions/ [Accessed: 17 March 2020]
  28. Arney, Kat (2020). Can you have a 'perfect genome'? Myths and misconceptions in genomics [Genetics Unzipped: The Genetics Society podcast, S3.06] 12th March. Available at: https://geneticsunzipped.com/blog/2020/3/12/can-you-have-a-perfect-genome-myths-and-misconceptions-in-genomics
  29. Milne R (2020) The rare and the common: scale and the genetic imaginary in Alzheimer's disease drug development. New Genetics and Society, vol. 39, issue 1, pp 101-126, March
  30. Savard J, Hickerton C, Metcalfe SA… Middleton A, et al (2020) From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing. AJOB Empirical Bioethics, vol. 11, issue 1, pp. 63-76, February

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