Chris and Clara Gaff's talk was a part of the Regulatory and Ethics Breakout Summary. Also presenting were Bartha Knoppers, Tiffany Boughwood and Madeleine Murtagh
From the event website:
Leadership from national initiatives around the globe convened in May 2019 to enable knowledge exchange and collaboration among our initiatives as we pursue common goals in advancing human health.
Present progress and challenges in genomic and clinical data collection, use, and sharing
Discuss technical, regulatory, clinical, and educational practices, challenges, and opportunities
Review progress from the Global Alliance for Genomics and Health (GA4GH) in facilitating and enabling genomic and clinical data-sharing internationally.
Patch C, Gaff C (2019). 'Research use of clinical (genomic) data: Experiences of Genomics England/NHS and Australian Genomics.' 2019 National Initiatives Meeting. London, UK, 3rd May.