Excerpt from article:
"Considerations about an individual’s confidentiality and privacy that exist in other areas of medicine cannot always be applied in genomics: one person’s genomic data can have implications for other family members. One effort to define these concepts (and to communicate essential information) is under way through a global survey, ‘Your DNA, Your Say’, being carried out by the Global Alliance for Genomics and Health (GA4GH), a group of large regional initiatives that collect genomic data."
Parry V (2017) Commit to talks on patient data and public health: Gene-edited embryos are exciting, but the truly urgent conversations concern genomic medicine, says Vivienne Parry. Nature, vol 548 p 137