Commit to talks on patient data and public health

Vivienne Parry, Head of Engagement at Genomics England, wrote this article which cites Your DNA, Your Say for the "World View" column of Nature
10th August 2017

Excerpt from article:

"Considerations about an individual’s confidentiality and privacy that exist in other areas of medicine cannot always be applied in genomics: one person’s genomic data can have implications for other family members. One effort to define these concepts (and to communicate essential information) is under way through a global survey, ‘Your DNA, Your Say’, being carried out by the Global Alliance for Genomics and Health (GA4GH), a group of large regional initiatives that collect genomic data."

 

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Citation:

Parry V (2017) Commit to talks on patient data and public health: Gene-edited embryos are exciting, but the truly urgent conversations concern genomic medicine, says Vivienne Parry. Nature, vol 548 p 137